Changing seasons.

An odd memory keeps lingering in my mind today.

It was 2 years ago.  The trees were changing as was I.  Shock had worn off,  everyone had gone back to living, and I was lost.   Sobbing, praying,  arguing with God filled my days.   I felt alone and forgotten by most of the people in my life. The period of shock was much easier than this next stage in my journey.

I became explosive in every way. Some friends slipped away simply being unable to deal with watching me slip into my own hell, while others proved to be my angels.  They loved me through the smeared mascara, uncontrollable crying,  and anger fits. 

One weekend afternoon the normalcy of our household felt overly synthetic.  My life 2 months after losing my son had turned into a charade.  It was all too much and I crumbled.  My husband calmly walked to the backyard,  set up a chair, poured me a hot cup of coffee, and gently walked me outside.  He put a blanket over my legs and kissed my forehead before leaving me alone.   The tears burned and my soul screamed as I cried.  When I calmed down, he joined me. There was no need for words as he was living the same hell, just under different rules.  A grieving dad's emotions aren't cared for by others as a mom's are. After time we chatted.  I don't remember our conversation, but I remember the feeling.  He was the only one in the entire world who knew how it felt to lose OUR son.

I've met many moms who have lost babies these past 2 years, and over heard more heartbreaking stories than I can count.  And in the end,  I realize I am so abundantly blessed.   Even in my moments of deepest despair, my husband was there with me.  We wiped tears, took turns breaking down,  and used our last bit of strength to be kind to each other.  The loss of a child has statistically devastating effects on a marriage, yet somehow we pulled together even closer. 

This time of year is a reminder of change.  A time in my life I will never be able to restore in many ways.  But this year I'm trying to focus on the love and support we all shared over CJ.  My little boy brought us together in ways I never knew possible.  Hopefully he's watching me now proud of his mommy.  Hopefully the seasons continue to bring comfort and memories of love.   That's a legacy I'm proud to build for CJ....

Love.

Love and blessing to you all.  Happy belated All Souls Day 2015.

#doitforcj

2015 wave of light

Another year.   This is my third wave of light.  How has my sweet little boy been gone over 2 years?   It just doesn't make sense.  

Time is a blessing.   Bad days are still excruciating,  but they tend to sneak up less often.   Not a single day goes by that CJ isn't on my mind from the moment I wake up until I cry myself to sleep.   Can you imagine?   My heart never gets to take a break.   But my soul is learning to love him in ways that are less painful. 

This wave of light is such a comfort.   It remind me that I'm not alone along with an opportunity to selfishly focus on CJ outloud for a change.  a few years have sneaked out as I read my newsfeed full of memorials to friends' babies.  So many beautiful, warrior moms who I have met on this journey.  Our angels are our common link, and I'm blessed to know every one of them.

Can you simply light a candle tonight in support of so many hurting souls tonight?   If you are personally struggling through your own loss,  know that you are not alone.   My prayers will included all those struggling silently as well as us loud mouths.  Tonight is simply about the babies...

Love to each and every one of you!
-Jen

Missing him...

I haven't been there in awhile.  Weeks honestly.  My son's 2nd birthday knocked the wind out of me.   A date on the calendar ripped at the scabs on my soul in ways I can't explain.   Every since my few visits around his birthday,  the pain had just been too horrific to visit the cemetery.

It's almost 2am and with all my might I'm resisting the urge to grab car keys and go.   I need to be close to him.  The feel of the grass on my cheek seems to be a distant memory.   Collapsing on the very earth he is buried beneath is the only action I experience that quantifies the sorrow my heart carries every single day.   It's my equivalent of checking on a sleeping child.  the difference being for 20 years every time I checked,  they were still alive.  I've lost that blind faith for the rest of my life.

I went to say to a friend that it's so nice to have everyone home tonight,  but the reality is that will never happen.   I will never have all of my kids home together.  It's a twisted road of words I'm  attempting to navigate.   How do I respect my son if I don't acknowledge his absence?

So tonight I'll stare at the ceiling for a little bit longer.   Tears burn my face in a way only endless tears do.  I miss him.   Yet somehow my heart will keep beating until morning.  Then I can honor him by loving his sisters and working my hardest to be an example of how we want the world to #doitforcj.

But tonight,   I miss him.

Just like CJ...

Another dead baby in the news.   That's how WGN headlined the end of a short life.   "Another dead baby...".  These headlines hurt me beyond understanding. The one found in Chicago today was 2 months young. 

Like so many other people in this world,  I would step forward in a heartbeat to hold that baby and raise him/her as my own. But maybe my vision is a bit different.  Of course I would welcome him into our lives as a beautiful,  living child.   But with that window passed,  my heart screams for something more.

That baby has a name.   God brought that child to this earth with purpose.   That lifeless, still child rests in a morgue or medical examiner's office.  At this moment,  he/she is just like CJ.

I pray that angel slipped out of this world peacefully.  And equally,  I wish I could swaddle the earthly remains.   That angel deserves his final moments to be held in loving arms,  surrounded in a soft blanket, and honored.  Just like CJ.

I'M BLESSED.   SO ABUNDANTLY BLESSED.

Although our story has broken my soul in ways that can never be repaired,   I had my moment with him.   I can relive the heartbreak of time taken from us,  or focus on the sweet moments we had.  CJ came into our world in a calm and quiet room.  He was swaddled, kissed, adored, and honored.  He was loved and cradled by family. His sweet body was there to remind us that his soul would live forever. 

When I hear of "another dead baby", I pray someone picked them up in loving arms as simply a baby, swaddled them in comfort,  marveled at their sweet face,  and honored the existence of such an amazing being.

Because they are just like CJ.

Missing some amazing things...

Holy heavens.  I am heavy hearted these past few weeks.   Must be the toddler birthday party I didn't get to celebrate.  A birthday cake never ordered.   Birthday kisses never delivered....

Often my best way to break my funk is to simply spill my guts.  So I've decided to simply list it all. All the crap that in missing out on that feels like the weight of the world on my shoulders.

I miss:

Thinking I knew what my future held for the next 18 years.

Sleep.

Having blind confidence in my body.

Being asked why I'm crying.

Exhaling.

Not knowing that an infant's casket resembles those white styrofoam coolers.

Thinking it would never happen to me.

Sleep.

Being confident that all was safe if you just make it to 26 weeks.

Not worrying about medication refills so that I can simply breathe every day.

A carefree look that I used to see in our daughters' eyes.

Being uncomfortable in a cemetery.

Anonymity in our church.

Sleep.

Simply answering the damn "how many kids to you have" question without stumbling.

Planning.

Loving my son in earthly form.

Being known for who I am,  not what I lost.

Talking to extended family without the awkward avoidance in their eyes.

Baby shopping.

Sitting in his perfectly simply nursery.

Sleep.

Washing tiny onsies.

Sewing nursing pads, burp rags,  and blankets until 3am.

Talking to my belly.

Allowing my husband to touch my belly.

Paying attention to signals like swollen ankles and treating my body with respect.

Feeling like I deserved respect.

Sleep.

Excitement.

People being happy for us.

Being happy for myself.

Guilt free chunks of time.

Daydreaming.

Praying with hope.

Sleep.

Sleep without screaming nightmares and phantom kicks. 

Sleep that leaves you refreshed,  comforted,  and ready to function.

I really miss sleep.

Yep, I'm back.

CJ,

Mom just can't seem to stay away from you today. Something was just screaming for me to come back.

So here I am. Laying in the grass right next to you sweet boy. And for the first time today, I am almost exhaling.

I wish I could explain to the rest of the world how insanely irrelevant my daily life really feels.  Some days your absence is like a screaming buzzer in my ear all day long.  I can't exhale until I stop and just miss you.   

So I'm exhaling.   

And I'm crying. 

I can't believe you would have been 2 on earth this month.   You should be driving me nuts. I shouldn't be crying alone in a cemetery...

I love you.   Help me #doitforcj.

As long as it's healthy...

A friend recently posted an ultra sound picture of a sweet little 8 week blob.   Her comment?  The typical.

Wedontcarewhatitisaslongasitshealthy....

Ignorance is truly bliss.

I would give my own life for CJ to have taken a breath.  My daydreams now involve having the chance to raise my downs syndrome baby.   I wish his little heart could have kept beating for 2 more weeks and given us the chance to get him help.   If I had only known...

I fantasize about what it would feel like to kiss his warm forehead as he is wheeled into surgery, or to have the opprotunity to make choices for him that would effect his life.  Any physical scars would have been proof he lived.   Instead,  I'm left with a wounded soul.

His life may have been riddled with medical and social obstacles, but all I wanted was the chance the spend time loving him through it and showing him how much I loved him.

I just want my sick baby better on earth with me.   Even if it was to be a short time.   No time at all is purely torture.  He didn't need to simply be healthy.   He just needed to be alive.

I wish I was still blissfully ignorant....